Wittek Foundation for HCM-PRO meeting: November 11, 2023, Philadelphia, PA
The second annual meeting of the Wittek Research Foundation for Hypertrophic Cardiomyopathy was held on November 11, 2023 in Philadelphia. Under the guidance of the members of our Scientific Advisory Board, the goals of this half-day meeting was to identify the current state patient reporting outcome tools and strategies for future developments in this area. Participants represented cardiologists, patient advocates, representatives from the pharmaceutical industry and the Federal Drug Administration. Weblinks to the agenda, slide presentations and videos of the event are below.
Slides
Current Use of PROs in HCM - Nosheen Reza
PRO-creation: What? When? How? - Chad Gwaltney
PROs in HCM clinical trials - Susan Pretko
Use of the PedsQL in the VANISH HCM trial - Catherine Ireland
Modifying the KCCQ as a fit for purpose PRO for HCM - John Spertus
Heart Failure Collaboratory: A Public-Private partnership between four groups - Mona Fluzat